New method found to reduce herpes infection

New method found to reduce herpes infection

Most people are well aware of the incurable std’s such as HIV and AIDS, but many are unaware that Herpes is also an incurable STD.  Once infected, it will remain in your body for the rest of your life. Thankfully, it does not severely decrease your immune system like the latter two mentioned, however, an outbreak of painful sores can re-emerge at any time for the rest of the infected persons life. There are currently medicines that help with this, usually a daily regime of anti-viral medicine. Currently, the way the medicine works is by interfering with the virus’s ability to replicate itself, enabling the body to fight off the infection.

The problem, however, is that the infection may lie dormant inside the cells and are unaffected by current medications. In other words, an active replication process needs to be occurring for medicine to be effective. Treating the virus in such a way causes drug resistance. A new study performed by the cooperation of several institutes found a new treatment, and existing drug called tranylcypromine (TCP), helps treat the infection even when it is not active. This has been shown to keep the virus dormant, keeping symptoms to a minimum and also reducing the transmission ability of the disease through shedding.

This is promising news as one of the major concerns with Herpes are infected mothers. HSV can cause Neonatal HSV in infants resulting in a high mortality rate, as the child has little to no immune system to fight off the infection. New therapies between the two types of drugs can result in reduced risk to mothers and their unborn children.

Estimates place Herpes infection rate from 20 to 25% in Americans, that’s 1 in 4 people living with the infection, many not even knowing they are infected. The only way to be sure is to get STD testing from a reliable clinic. We recommend you get tested with your family practitioner, however, we can also recommend Sexual Wellness Clinics as an alternative. Many do not want their doctors or insurance companies knowing about their condition, which is why they provide private testing at laboratories all over the US. Its a simple blood or urine sample, not even the technician taking the samples will know your name, or what you’re being tested for, as the forms contain your patient ID number, not your name. In case you are positive for an STD, they even have doctors that will prescribe medication or provide counseling for you.

Jorge Posada Foundation Changes Direction

Jorge Posada Foundation Changes Direction

Almost 3 years ago the Jorge Posada Foundation closed it’s doors and stopped operation. Jorge was pleased to work with so many families and their children affected by craniosynostosis. In Laura Posada’s words: “I met amazing people along the journey that truly changed my life forever. We stated the Foundation from a place of fear and pain, but we were able to turn it around to give craniosynostosis a voice in this world. This was possible because you listened and decided to join our vision and help. We accomplished a great deal, and I will continue helping the community as a board member of the National Foundation for Facial Reconstruction (NFFR) as well as some of our other partners. The Mentor’s program will also continue under the Posafa Family Restricted Fund and the NFFR. To all our families, mentors, partner, sponsors, doctors, and friends I simply say THANK YOU!”

Today we move in a new direction bringing awareness to various forms of illnesses. Using the momentum built by Jorge we will remount and start a new campaign. Soon we will highlight many health related problems that afflict millions of people across America. Each month we will highlight a new disease or illness, either curable or incurable or manageable. We will discuss prevention, cures, and medicines to treat the diseases. Also how the diseases or illnesses are contracted and spread, and what is being done to raise awareness, or what is being done to find a cure, or what is the best method of prevention. We will no longer concentrate only on children, but the well-being of people of all ages.

Stay tuned in the near future to see the new face of this website and to help raise awareness and help those in need. Let’s create a world filled with knowledge, peace, and wellness for our families and children.


2010 and 2011 Photo Gallery

Click on each link to view photos from our events

Check out these great photos and see all of the sponsors who have supported us!  Please be sure to check out our “Events” page for archived galleries from prior to 2010.

Decade of Difference – November 9, 2011 – The Surrey Hotel NYC (photos courtesy of Tom Flint)

1st Annual Family Day – August 5, 2011 at Yankee Stadium (photos courtesy of Tom Flint)

Cinco Anillos Sangria Launch Party – June 6, 2011 (photos courtesy of Dimitrios Kambouris)

Press Conference at Yankee Stadium with The Posadas, Dr. Staffenberg, and Wisin y Yandel

Farmingdale Community Summit Council, Inc. Health Expo

Tour de Puerto Rico

5K Race/Walk – Long Island, NY

Destellos de la Moda – Puerto Rico

Destellos de la Moda – Part 2

Hip Hip Jorge T-shirt Launch – Yankee Stadium

Beauty of Love Book Signing at Barnes & Noble – New York City

Jersey City Puerto Rican Day Parade

Dia Familiar (Family Day) 2010 – Puerto Rico

NFFR & Rangers Ballpark – Arlington, TX

National Foundation for Facial Reconstruction ~ Craniosynostosis Conference – Atlanta, GA


Meet Brianna

We were told by my GYN immediately when she was born that there was something a little off with her head and that I needed to see a specialist. Imagine just giving birth and being told there is something wrong with your beautiful baby. We went to a Pediatrician who misdiagnosed her and said "there was nothing wrong with her head," of course the words you want to hear. However, these were found untrue. On my second follow up visit with the GYN, and upon his insistence he referred us to another Pediatrician, whom in turn confirmed the GYN's suspicion. The Pediatrician immediately referred us to a Pediatric Neurologist Surgeon. At that point Craniosynostosis became a big part of our lives. We did not even know what it was, who to talk to, what was going to happen. Emotionally, it is a roller coaster. You try to put on a strong front for the rest of the family. It was a 4 1/2 hr surgery followed up by intensive care 2 days, and 2 days in a room. I had asked the doctor to immediately when she was taken out of recovery to call me when the doors open. I will never forget when the doors open and she was rolled out with all kinds of tubes and wraps. It just broke my heart, when Brianna saw me she started crying. But I had to see her first because I did not want my husband to break down. They rolled her in to ICU, I prepared him said she looks good and she’s ok. However after the first few hours my husband broke down. It was the first time I had seen him cry. After the second day she started smiling, by the fourth day we could not wait to take her home. Those 4 days at the hospital I made a promise to our daughter. I was going to make her a strong, independent and successful person in whatever path of life she showed interest. I did not want people to feel sorry for her, nor use it as an excuse. She has a scar from ear to ear which is a constant reminder. Sometimes she can see herself and so can her hairdresser whenever she gets a haircut. That's when it comes up.

Today Brianna is a smart, talented, beautiful, and sweet girl, who can accomplish anything she puts her mind to. Currently she is a straight A Honors Student, who has a passion for the arts, singing, acting, dancing. Because of my promise to our daughter we moved to L.A. to pursue her dream, for we accomplished ours. I share this story with you so that you know you are not the only one, there is light at the end of the tunnel, and to thank your lucky stars there are organizations like this willing to mentor, and help. Take the negative of your experience and turn it into a positive. You owe it to yourself, family and child.  Craniosynostosis changed our life, for the better! You are not alone….. Jesme Family

"Rise" by Brianna Jesme:




Where people with Craniosynostosis share their story…

Cranio Kids:  Tell us about your journey through Craniosynostosis!

Submit your story, poem, drawing, song, etc…

Do you or a child you know have Craniosynostosis?  We would love for you to submit your journey through story, photo, poem, drawing, etc. to be featured on our site.  All submissions MUST be in JPG or PDF format.  If you are under 18, your parent must sign and return the media release form and return to or fax it to 646-688-5921. CLICK HERE to download the media release form.  We look forward to hearing from you!


Foundation Partners

Click logos for web site

Children’s Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for people with facial differences and their families.  CLICK HERE to view their newsletter.

The mission of Craniosynostosis and Positional Plagiocephaly Support, Inc. is to spread awareness, educate and offer support and guidance to families affected by Craniosynostosis and/or Positional Plagiocephaly.


Connecticut Children’s Medical Center is dedicated to improving the physical and emotional health of children through family-centered care, research, education and advocacy.


Founded in 1915, Geisinger is a physician-led health care system, dedicated to health care, education, research and service spanning 43 counties of 20,000 square miles and serving 2.6 million people.



Established in 1951, the National Foundation for Facial Reconstruction addresses the plight of children with a facial disfigurement by supporting state – of – the – art treatment, innovative research, psychosocial support and medical training that inspires a new generation of pediatric doctors.

The Department of Surgery at NYU Langone Medical Center merges the most advanced aspects of research, medical education and clinical care offered by a major urban academic medical center.
Seattle Children’s Hospital specializes in meeting the unique physical, emotional and developmental needs of children from infancy through young adulthood.

St. Joseph’s Children’s Hospital is a premier 164-bed hospital committed to providing everything needed for the health and well-being of children. St. Joseph’s Children’s Hospital is best described as an innovative, family-centered hospital known for its high-tech medical care in a child-friendly environment.


The mission of the World Craniofacial Foundation is to give help, hope, and healing by uplifting people with craniofacial abnormalities and their families.


Heroes 4 Hope Gala

Heroes 4 Hope Gala

September 10, 2009 – Sheraton New York Hotel and Towers, NYC

Diamond Support // Our Sponsors

Strike-Out Sponsors
United Airlines
The Posada Family

Heroes4Hope Sponsors
Anheuser-Busch, Inc.
Gelber Group
New York Yankees
Sonny Kalsi

Most Valuable Player Sponsors
Atlas-Acon Electric Service Corp.
Bank of America
Heidrick and Struggles
Mohegan Sun
Newark Bears
Thomson Reuters

All-Star Sponsors
Allied World Reinsurance Company
Athletes’ Careers Enhanced & Secured Inc.
Children’s Craniofacial Association
David Staffenberg, MD
Gary Green & Robert Lapidus
Goldman Sachs & Stuart Kasdin
Goya Foods
Hacer Scholarship
IronShore Services
Jackson Development Group
Joy Construction
Jones Day
Lazaro Mur & Tony Amador
Lexington Insurance
Liquidnet Holdings
Manhattan Beer Distributors
Michael Bonner
Millwright Woodwork, Inc.
Monroe Orthotics and Prosthetics
Montefiore Medical Center
Platinum Maintenance
Platinum Underwriters
Quantum Family Office Group
Southern Wine and Spirits
The Redwoods Group Foundation

BidPal Network
BTIG & Steven Parker
Berk Communications
Dr. Thomas M. Haveron
Geisinger Medical Center
Mier, Molly, & Joey
NYY Steak
OCE North America
Simon & Schuster
Steiner Sports
Vincent Limousine
Yaeger Public Relations
YES Network

Amy Orr
Catch 24 Advertising & Design, Inc
Cindy Lewis
Donna Hughes
Elizabeth Rose Consulting, LLC
Gary Tiepelman
Gene Dobin
Global Events
Grant Frankel
Jason Bobbit
Jim Moscatello
KLS Martin
Lee Mazzilli
Lorene Felleman
Michael Amatrudo
Michelle Golombuski
Monteray Bay Corporation
Suzyn Waldman
Tom Kushner
Westside Pediatrics

Celebrity Basebowl Tournament

2010 Celebrity Basebowl Tournament

November 7, 2010 – Chelsea Piers, NYC

300 Sponsor

Redwoods Managers Inc.
United Airlines


Strike Sponsor

Bank of America
Posada Family
New York Yankees Foundation
GreenOaks and Kasdin Family


Split Sponsor

Aces, Inc.
Mohegan Sun
Luis Jimenez Show

Lane Sponsor

Aran Insurance Services Group
Bill Mecklenberg and Christine Condino-Mecklenberg
Catch NY
Dr. Staffenberg
Friends of Morgan Mecklenberg and CCA
Instinet Holdings, Inc.
Insurance Professionals Supporting CCA and JPF
Ironshore Services, Inc.
Jackson Development
Lexington Insurance
Steiner Sports
Southern Wine & Spirits
Starr Foundation
St. Joseph's Regional Medical Center Foundation
UBS Financial Services Incorporated of Puerto Rico

5K Race and Walk

1st Annual Halloween 5K Run/Walk for Craniosynostosis

October 31, 2010 – Garden City, NY

Bethpage Federal Credit Union

Jorge Posada Foundation

Craniosynostosis and Positional Plagiocephaly Support Inc. (CAPPS)

Long Island Neurosurgical Association

Monroe Orthotics and Prosthetics

National Foundation for Facial Reconstruction


Long Island Plastic Surgical Group

Dr. David Staffenberg




Our events throughout this past year have been memorable and successful, thanks to the support of our sponsors.  We can only continue this important work through the generosity of our friends.


2010 Celebrity Basebowl Tournament Sponsors

1st Annual Halloween 5K Run/Walk for Craniosynostosis Sponsors

2009 Heroes for Hope Gala Sponsors



2011 Grant Award Recipients To Date

  • Children's Craniofacial Association
  • St. Joseph's Regional Medical Center
  • CAPPS Kids
  • Seattle Children's Hospital
  • National Foundation for Facial Reconstruction
  • Recinto de Ciencias Médicas
  • Baptist Health South Florida Foundation
  • Ameriface

2010 Grant Award Recipients To Date

  • Children's Craniofacial Association
  • Children's Hospital at Montefiore
  • Connecticut Children's Medical Center Foundation
  • Geisinger Medical Center
  • National Foundation for Facial Reconstruction
  • Seattle Children's Hospital

2009 Grant Award Recipients To Date

  • Ameriface USA
  • Childrens Craniofacial Association
  • Childrens Hospital at Montefiore
  • National Foundation for Facial Reconstruction
  • Connecticut Childrens Medical Center
  • Geisinger

2008 Grant Award Recipients To Date

  • AmeriFace USA (formerly AboutFace USA)
  • Children's Craniofacial Association
  • The Children's Hospital at Montefiore
  • National Foundation for Facial Reconstruction
  • Phoenix Children's Hospital
  • University of Michigan Hospital
  • Yale School of Medicine

    2007 Grant Award Recipients

  • AmeriFace USA (formerly AboutFace USA)
  • Centro Medico Hospital
  • Children's Craniofacial Association
  • The Children's Hospital at Montefiore
  • Connecticut Children's Hospital
  • His House Children's Home
  • Miller School of Medicine, University of Miami
  • National Foundation for Facial Reconstruction

    2006 Grant Award Recipients

  • Amanda Kanowitz Foundation
  • AmeriFace USA (formerly AboutFace USA)
  • Children's Craniofacial Association
  • The Children's Hospital at Montefiore
  • Elizabeth Glaser Pediatric AIDS Foundation
  • His House Children's Home
  • National Foundation for Facial Reconstruction
  • Puerto Rican Family Foundation

    2005 Grant Award Recipients

  • American Red Cross
  • Center for the Disabled
  • The Children's Hospital at Montefiore
  • His House Children's Home
  • University of Pittsburgh
  • Winthrop University Hospital



Posada Foundation Events

View Calendar | Upcoming Events | Past Events


View Calendar | Upcoming Events | Past Events

NFFR Races for Faces

July 22, 2012

The National Foundation for Facial Reconstruction is proud to present its signature fundraising event, Races for Faces. Join us at Races for Faces for a day of fun, health and fitness as we raise awareness and funds for those affected by craniofacial differences. For the past 60 years, the National Foundation for Facial Reconstruction (NFFR) has supported the medical and psychosocial treatment of those with facial differences by serving as the funding arm of the renowned Institute of Reconstructive Plastic Surgery (IRPS) at NYU Langone Medical Center.


Visit Races for Faces to learn more.


Jorge Posada to be Inducted to Latin American International Sports Hall of Fame

This Weekend 1/28/12

The Latin American International Sports Hall of Fame will induct a pair of Major League Baseball superstars this weekend. New York Yankees catcher Jorge Posada and St. Louis Cardinals starting left-handed pitcher Jaime Garcia are slated for induction. Both World Series champion athletes generously give back to their communities while striving for perfection in America’s pastime.

CLICK HERE to read the entire article posted on the Latin American International Sports Hall of Fame website.


Jorge Posada retires after 17 seasons, 5 titles

Associated Press

NEW YORK – Flanked by his wife and children, with five World Series trophies sitting on a table to his right, Jorge Posada announced his retirement Tuesday.

The five-time All-Star catcher ends his major league career after 17 seasons, all with the New York Yankees.

The 40-year-old Posada finished with a .273 career batting average, 275 home runs and 1,065 RBIs. Shifted to designated hitter last year, his playing time diminished.

Posada joins Bernie Williams and Andy Pettitte in retirement, leaving only 37-year-old Derek Jeter and 42-year-old Mariano Rivera from the core group that led the Yankees to four World Series titles in five years from 1996-2000.

With Jeter, Rivera and CC Sabathia looking on, Posada began by quoting Joe DiMaggio: "I want to thank the good Lord for making me a Yankee."

"I could never wear another uniform," he said. "I will forever be a Yankee."


CLICK HERE to read the entire article on


Jorge Posada to Announce Retirement

New York Yankees Official Press Release


The New York Yankees today announced that catcher Jorge Posada will hold a press conference on Tuesday at 11:00 a.m. to announce his retirement.

Posada, 40, finishes his 17-year Major League career with a .273 batting average (1,664-for-6,092) with 900 runs, 379 doubles, 275 home runs and 1,065 RBI in 1,829 games—all with the Yankees. Of the 13 former Major League catchers in the Hall of Fame (Johnny Bench, Yogi Berra, Roger Bresnahan, Roy Campanella, Gary Carter, Mickey Cochrane, Bill Dickey, Buck Ewing, Rick Ferrell, Carlton Fisk, Gabby Hartnett, Ernie Lombardi and Ray Schalk), only Berra has better numbers in batting average, home runs and RBI (.285, 358 and 1,430, respectively).

CLICK HERE to read the entire press release.


Mentors Network

The Foundation receives a number of requests from families with children that have been diagnosed with Craniosynostosis, who just need to talk about their experience, or are looking for advice and emotional support. To serve this need, we have developed a Mentors Network, where we recruit volunteers that have experienced Craniosynostosis in their family. These volunteers are then partnered up with those families looking for help.  Mentors are matched with families based on location and type of Craniosynostosis. If possible, we try to match families based on the doctors and hospitals they used.

Becoming a Mentor

Our mentors are currently located in 34 different states throughout the country.  These families generously donate their time to be supportive to those who are just starting this process.  Have you experienced Craniosynostosis? Are you caring, compassionate, understanding, empathetic, patient, honest, trustworthy, kind, and knowledgeable about Craniosynostosis?

If you are interested in becoming a volunteer for this program, please completely fill out the form below and email to

New Mentor Questionnaire

You will be contacted by the Foundation staff after the information is received.

**Please keep in mind that mentors are NOT to provide any medical advice or question the decisions their mentoree's doctors have made.



Seeking a Mentor

Families that have a child diagnosed with Craniosynostosis are not alone.  Although it may be a devastating diagnosis, it is fortunately a very treatable birth defect.  If you are interested in seeking a mentor, please completely fill out the form below and email to

Seeking a Mentor  – Questionnaire



Are you a current or former Mentoree?

Please tell us about your experience by clicking on the link below: