"21 days left. As each day brings me a new sun every morning and a new moon every night, it also brings me another step closer to a day that I dread. I shiver everytime I look at the calendar as I "x" off the numbers. The time is passing so quickly yet not fast enough. I long for the spring to bring us warm days and a new look on life, when The surgery is over and the healing has begun. Valentine's Day is now the worst day of my life. This sweet Honey Bee of mine needs a strong Mommy, but everytime he is napping or I am driving alone to class, I break down and cry. I never let him see me and while we play, I push the operation out of my head and we giggle and peek-a-boo like our life is normal and nothing bad can happen to us. If only those dreams of perfection were true. But my Titan is perfect, he will never be less perfect than the day he was born. Now I know the reason I named him what I did. He is a king, a father of everything flawless, a God of the God's, a protector of mankind (in this case, his Mother). He is My everything and my son. No scar will take away his unspoiled beauty. My son, my Honey Bee, my Pumpkin Pie, My Tiny Titan and my world, I love you with every fiber of my being and every ounce of my heart. You, my child, are flawless and it is my turn to be the strong one."
Lisa North
The Jorge Posada Foundation
*Disclaimer: This web site should not be viewed as advice on the treatment and/or diagnosis of Craniosynostosis or any other medical condition.
Advice on the treatment or care of a child suffering from CS should be obtained only through consultation with a physician who has examined that child
or is familiar with that child's medical history.