Cher's Family Retreat
contact: areeves@ccakids.com
214-570-9099 or 800-535-3643
The story behind the retreat...
Having acted in the role of the mother of a child with a craniofacial deformity in the movie Mask Cher was a natural choice to represent CCA. However, Cher did not become actively involved until 1990 when she joined children, adults and medical professionals in Washington, D.C. to raise public consciousness during Craniofacial Awareness Week. During that time, she developed personal friendships with children and their parents who were there to attend Congressional hearings and other activities. While in D.C., Cher spent every available moment with the children, even inviting them to her room without parents. Her persona was one of sincerity, warmth and genuine concern. Cher was very comfortable with the children, as well as the families. A feeling of mutual admiration soon developed among all.
On the final night of what can only be described as a series of mountaintop experiences, Cher invited everyone to her room where hours were spent visiting and sharing special concerns among craniofacial patients, their siblings and parents. One mother shared that this was the first time she and her three-year-old little boy with Goldenhar syndrome had ever spent time with others going through similar experiences. Others in the room echoed her feelings of isolation. It was then that Cher conceived the idea of a camp or retreat for the whole family. The goal of the retreat was to provide opportunities for the entire family to interact, share ideas, discuss problems and their solutions and make lifelong friendships with others having similar experiences.
CLICK HERE to visit The Children's Craniofacial Association's Website for more information.
The Jorge Posada Foundation
*Disclaimer: This web site should not be viewed as advice on the treatment and/or diagnosis of Craniosynostosis or any other medical condition.
Advice on the treatment or care of a child suffering from CS should be obtained only through consultation with a physician who has examined that child
or is familiar with that child's medical history.