I would like to announce that the Jorge Posada Foundation has established a restricted fund with our friends at the National Foundation for Facial Reconstruction (NFFR). The NFFR will be running the Mentoring Network for Craniosynostosis patients. I will continue my mission as a Board member of the NFFR. On behalf of my staff here at the Foundation, I would like to extend a heartfelt thanks for your support and dedication towards this special program. This unique support network has provided families living with Craniosynostosis comfort, advice and knowledge as they begin or continue treatment for their loved ones and has connected families in 34 states across America!
For over 60 years the NFFR has supported the treatment of children and adults with facial differences and continues its mission by taking on this new role to help families in need.
If you were a mentor, mentee or are interested in participating in this crucial program, please contact Veronica Michaeli, the NFFR?s Family Program Director at (212) 263 6656 or firstname.lastname@example.org to learn more.
The Jorge Posada Foundation | 6619 South Dixie Highway #128, Miami, FL 33143
*Disclaimer: This web site should not be viewed as advice on the treatment and/or diagnosis of Craniosynostosis or any other medical condition.
Advice on the treatment or care of a child suffering from CS should be obtained only through consultation with a physician who has examined that child
or is familiar with that child's medical history.