Mentors Network

The Foundation receives a number of requests from families with children that have been diagnosed with Craniosynostosis, who just need to talk about their experience, or are looking for advice and emotional support. To serve this need, we have developed a Mentors Network, where we recruit volunteers that have experienced Craniosynostosis in their family. These volunteers are then partnered up with those families looking for help.  Mentors are matched with families based on location and type of Craniosynostosis. If possible, we try to match families based on the doctors and hospitals they used.

Becoming a Mentor

Our mentors are currently located in 34 different states throughout the country.  These families generously donate their time to be supportive to those who are just starting this process.  Have you experienced Craniosynostosis? Are you caring, compassionate, understanding, empathetic, patient, honest, trustworthy, kind, and knowledgeable about Craniosynostosis?

If you are interested in becoming a volunteer for this program, please completely fill out the form below and email to mentors@jorgeposada.com.

New Mentor Questionnaire

You will be contacted by the Foundation staff after the information is received.

**Please keep in mind that mentors are NOT to provide any medical advice or question the decisions their mentoree's doctors have made.

Seeking a Mentor

Families that have a child diagnosed with Craniosynostosis are not alone.  Although it may be a devastating diagnosis, it is fortunately a very treatable birth defect.  If you are interested in seeking a mentor, please completely fill out the form below and email to mentors@jorgeposada.com.

Seeking a Mentor  - Questionnaire

Are you a current or former Mentoree?

Please tell us about your experience by clicking on the link below:

Jorge Posada Foundation Mentoree Survey