Sophie was born at 36 weeks on Dec. 22, 2008. She was in the Neonatal Intensive Care Unit (NICU) at birth because of jaundice and her early arrival. Her cranio (sagittal) was diagnosed in the NICU on day one.
Sophie was treated at St. Louis Children’s Hospital where she met with her Craniofacial and Neurosurgeon when she was 2-months old. She had endoscopic surgery at 4 and half months followed by a year of cranial band therapy.
Her surgeons were Dr. Alex Kane (CFS) and Dr. Matthew Smyth (NS), they are still following her cranial-band therapy very closely and she is scheduled to end her therapy on the day before her first birthday. Her parents are planning a big party with a helmet shaped cake to be able to eat the helmet "All Gone"."
Cranio kids are selected at random. Any child...pre op or post op can be entered. They will be featured on our websites (jorgeposadafoundation.org and cappskids.org) and receive a t shirt.
To submit, please attach a photo to an email and send it to syddesi2@aol.com or cappskids1@aol.com.
The Jorge Posada Foundation
*Disclaimer: This web site should not be viewed as advice on the treatment and/or diagnosis of Craniosynostosis or any other medical condition.
Advice on the treatment or care of a child suffering from CS should be obtained only through consultation with a physician who has examined that child
or is familiar with that child's medical history.