Colby was born on August 18, 2008 after a full term pregnancy. He was 7lbs 14oz and 20" long healthy baby boy. By the next morning we noticed that his right eye didn't open as wide as the left one, the pediatrician also made a comment that his soft spot was very small and hard to find. We went home thinking all was well. At about 5 days old we noticed a portion of his head was sticking out more than the other side (this was the area not affected by Cranio) After calling the Pediatrician and explaining what I was seeing she said not to worry and she would see him at his one month check up. At his one month check up they quickly sent us to the hospital for X-ray's and then to Albany Medical Center Hospital for a CAT Scan of his head. All of this Confirmed that he had not one but at least two closures (coronal and sagittal suture) We met with Dr. John Waldman and Dr. John Noonan right away they told us that he would have to have surgery very soon to avoid pressure building up. Surgery was on December 10, 2008 at just 3.5 months old. As you can see he is doing wonderful. We see his Dr's at least once a year. We are thankful for all of the Support we have received from Friends and Family as well as CAPPSKids and our online Craniosynostosis Families.
The Jorge Posada Foundation | 27 W. 20th Street, 9th Floor, New York, NY 10011 | Tel 646-330-5336 Fax 646-688-5921
*Disclaimer: This web site should not be viewed as advice on the treatment and/or diagnosis of Craniosynostosis or any other medical condition.
Advice on the treatment or care of a child suffering from CS should be obtained only through consultation with a physician who has examined that child
or is familiar with that child's medical history.